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    Sturge-Weber Foundation

    Company Information :
    Sturge-Weber Foundation
    PO Box 418
    Mount Freedom, NJ 07970
    USA
    Ph. 973-895-4445 ext.4
    Media Contacts:
    Anne Howard

    Director of Partner Programs

    The Sturge-Weber Foundation

    P.O. Box 418

    Mt. Freedom, NJ 07970

    Phone: (973) 895-4445

    Fax: (973) 895-4846

    Email: ahoward@sturge-weber.com


    The Sturge-Weber Foundation CEO Appointed To The Coalition Of Skin Disease Board

    For Immediate Release

    RANDOLPH, N.J./EWORLDWIRE/Dec. 2, 2004 --- The Sturge-Weber Foundation (The SWF) today announced that President and CEO, Karen L. Ball, has been appointed to the Coalition of Skin Disease (CSD) Board. The Sturge-Weber Foundation improves the quality of life for individuals with Sturge-Weber syndrome, Klippel-Trenaunay syndrome, and Port Wine Stain related conditions. The Sturge-Weber Foundation accomplishes this mission with comprehensive programs of support, referral, education and by facilitating research.

    The Coalition of Skin Disease (CSD) is comprised of 24 organizations focused on skin disorders. It was established in 1986 to create awareness on the severe lack of skin disease research funding. The CSD raises awareness of the financial, emotional and familial impact of skin diseases on millions of Americans.

    The CSD also works closely with the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) to coordinate efforts for all skin diseases to improve the quality of life for individuals affected by a skin disease.

    Says Ball, who, with her husband Kirk, started the Foundation 18 years ago, "This is one of the alliances that the SWF has forged over the years that make us all stronger."

    The Sturge-Weber Foundation has funded, as well as facilitated, over 1.3 million dollars in research funding for Sturge-Weber syndrome alone. For more information, visit www.sturge-weber.com or email swf@sturge-weber.com.

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    CONTACT:
    Anne Howard
    The Sturge-Weber Foundation
    1240 Sussex Turnpike
    Randolph, NJ 07869
    PHONE. 973-895-4445
    FAX. 973 895-4846
    EMAIL: ahoward@sturge-weber.com
    http://sturge-weber.com

    SOURCE: The Sturge-Weber Foundation

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