The Sturge-Weber Foundation CEO Appointed To The Coalition Of Skin Disease Board
For Immediate Release
RANDOLPH, N.J./EWORLDWIRE/Dec. 2, 2004 --- The Sturge-Weber Foundation (The SWF) today announced that President and CEO, Karen L. Ball, has been appointed to the Coalition of Skin Disease (CSD) Board. The Sturge-Weber Foundation improves the quality of life for individuals with Sturge-Weber syndrome, Klippel-Trenaunay syndrome, and Port Wine Stain related conditions. The Sturge-Weber Foundation accomplishes this mission with comprehensive programs of support, referral, education and by facilitating research. The Coalition of Skin Disease (CSD) is comprised of 24 organizations focused on skin disorders. It was established in 1986 to create awareness on the severe lack of skin disease research funding. The CSD raises awareness of the financial, emotional and familial impact of skin diseases on millions of Americans.
The CSD also works closely with the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) to coordinate efforts for all skin diseases to improve the quality of life for individuals affected by a skin disease.
Says Ball, who, with her husband Kirk, started the Foundation 18 years ago, "This is one of the alliances that the SWF has forged over the years that make us all stronger."
The Sturge-Weber Foundation has funded, as well as facilitated, over 1.3 million dollars in research funding for Sturge-Weber syndrome alone. For more information, visit www.sturge-weber.com or email swf@sturge-weber.com.
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CONTACT:
Anne Howard
The Sturge-Weber Foundation
1240 Sussex Turnpike
Randolph, NJ 07869
PHONE. 973-895-4445
FAX. 973 895-4846
EMAIL: ahoward@sturge-weber.com
http://sturge-weber.com
SOURCE: The Sturge-Weber Foundation