Company Information :
Sturge-Weber Foundation
PO Box 418
Mount Freedom, NJ 07970
USA
Ph. 973-895-4445 ext.4
Media Contacts:
Anne Howard
Director of Partner Programs
The Sturge-Weber Foundation
P.O. Box 418
Mt. Freedom, NJ 07970
Phone: (973) 895-4445
Fax: (973) 895-4846
Email: ahoward@sturge-weber.com
Media Advisory
Trevor, who has Sturge-Weber Syndrome, had surgery in 2003 to alleviate intractable seizures and has worked with several therapists on the road to rehabilitation. Sturge-Weber syndrome (SWS) is a rare neurological disorder and is accompanied by several related conditions. The boy has a port wine stain (PWS) birthmark on the left side of his face and experienced seizures since infancy. Trevor goes to Olympic View elementary school in Seattle. The Sturge-Weber Foundation (SWF) of Mt. Freedom, N.J. is an international organization providing families of children like Trevor, and adults with SWS, Klippel-Trenaunay syndrome and port wine stain conditions, with education, information, and friendly support. The SWF also funds research and provides education to medical institutions. More information about the Sturge-Weber Foundation's work is available by calling 973.895.4445 or by visiting www.sturge-weber.com. http://newsroom.eworldwire.com/newsroom_headers/2765_94963.jpg" align="right">
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CONTACT:
The Sturge-Weber Foundation
1240 Sussex Turnpike
Randolph, NJ 07869
PHONE. 973-895-4445
FAX. 973 895-4846
EMAIL: ahoward@sturge-weber.com
http://sturge-weber.com
SOURCE: The Sturge-Weber Foundation
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