The Sturge-Weber-Foundation
Internet:
ahoward@sturge-weber.com
http://www.sturge-weber.com
Company Information :
The Sturge-Weber-Foundation
PO Box 418
Mt. Freedom, NJ 07970
USA
Ph. 973 895-4445
Media Contacts:
Anne Howard
Director of Partner Programs
973 895-4445
For Immediate Release
Crouch is an engineering executive who has designed and built all types of electric generating facilities. He and his wife, Mary, have two children and two grandchildren. Crouch's relationship to the SWF stems from the loss of another grandchild to complications of Sturge-Weber syndrome as an infant. Along with participating in the SWF's annual Month of Awareness in May, 2007, Crouch's stated goal is to help focus energy on finding a means of arresting the progressive nature of the disease. Since its incorporation in the USA as an International 501(c)(3) non-profit organization in 1987, the Sturge-Weber Foundation has provided education, information and friendly support for patients, parents, professionals and others concerned with Sturge-Weber Syndrome (SWS) - a rare congenital neurological disorder, growing to expand support for individuals with capillary vascular birthmarks, Klippel Trenaunay (KT) and Port Wine Stain (PWS). Along with annual Mardi Gras festivities and fundraising activities, informal local family days and activities of the foundation expanded to include the first ever SWF Golf Outing on Long Island at The Nassau Country Club in Glen Cove in 2006. Foundation operations are supported by private and corporate donations and grants. The SWF also supports and instigates research into the cause of congenital port wine stain related conditions. To learn more, visit 'http://www.sturge-weber.com'.
HTML: http://www.eworldwire.com/pressreleases/16664
PDF: http://www.eworldwire.com/pdf/16664.pdf
MOBILE: http://e4mobile.com/view_release.php?id=16664
ONLINE NEWSROOM: http://www.eworldwire.com/newsroom/310205.htm
NEWSROOM RSS FEED: http://newsroom.eworldwire.com/xml/newsrooms/310205.xml
LOGO: http://www.eworldwire.com/newsroom/310205.htm
CONTACT:
EMAIL: ahoward@sturge-weber.com
L Karen Ball
EMAIL: kball@sturge-weber.com
Sturge-Weber Foundation
PO Box 418
Mt Freedom, NJ 07970
PHONE. 973 895-4445
FAX. 973 895-4846
http://www.sturge-weber.com
SOURCE: The Sturge-Weber Foundation
-
Client Login
username: password: Forgot Password? -
chat
