Company Information :
Sturge-Weber Foundation
PO Box 418
Mount Freedom, NJ 07970
USA
Ph. 973-895-4445 ext.4
Media Contacts:
Anne Howard
Director of Partner Programs
The Sturge-Weber Foundation
P.O. Box 418
Mt. Freedom, NJ 07970
Phone: (973) 895-4445
Fax: (973) 895-4846
Email: ahoward@sturge-weber.com
Media Advisory
The Sturge-Weber Foundation provides education and friendly support to families and individuals coping with Sturge-Weber syndrome (SWS), Klippel-Trenaunay syndrome (KTS) and Port Wine Stain (PWS) conditions, all rare neurological disorders. Committee members are Nancy Cupo, Lisa Heller-Devore and Theresa Maughn of Randolph, and Mary Going and Susan Corbo of Succasunna. The Mardi Party will feature a costume parade, food and drink, dancing and a silent auction. In the spirit of the New Orleans Mardi Gras celebration, there will be a photo display of SWF members in the Gulf Coast area who have had to contend with this past season's storms while continuing to cope with their on-going medical concerns. Sturge-Weber syndrome is a rare neurological disorder that affects the brain, eyes and skin. In recent years, the Foundation has responded to an increased number of requests for information and assistance because of exposure on the Internet. Opportunities are available for local and corporate sponsorship and silent auction donations. The Foundation can be reached at 800 627-5482 or swf@sturge-weber.com.
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CONTACT:
The Sturge-Weber Foundation
1240 Sussex Turnpike
Randolph, NJ 07869
PHONE. 973-895-4445
FAX. 973 895-4846
EMAIL: ahoward@sturge-weber.com
http://sturge-weber.com
SOURCE: Sturge-Weber Foundation
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